ADEM in 4 yr old?

involves demyelination in the spinal cord and in the brain. The demyelination in the brain is different than a demyelinating attack from MS; the lesions are scattered and do not appear in the same pattern as those from an MS attack.

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ADEM in 4 yr old?

Postby elonalum » Wed Aug 13, 2003 1:35 pm

After more than 5 weeks of complaints of headaches in my 4 yr old, she has been unofficially diagnosed with ADEM. An MRI and bloodwork has been done. Her Ped spoke with an infectious disease specialist who felt all the signs and symptoms pointed to ADEM. Assuming this is what she has, should we try steriods or continue to treat her with Ibuprofen until this runs its course?
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Postby Guest » Wed Aug 20, 2003 6:21 am

My sister has ADEM, first presenting at 4 years old, and now again at 6. Is your daughter's eyesight affected?
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ADEM

Postby sirikay » Mon Sep 22, 2003 10:47 am

By now I must imagine you have already made your decision. My 5 year old son had ADEM this year complicated by possible Herpes Enc. diagnosis so steroids couldn't be administered and we almost lost him 3 times to the brain swelling. Well again, we went home then a month later brought him back with ataxia and an apparent recurrence of ADEM. 5 days of IV steroids were administered and they were miraculous compared to the first 6 weeks in ICU. He is perfect now. Having prior been against steroid use, I now herald them. I hope your daughter is ok. Be glad to talk if you want.

Siri
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ADEM

Postby elonalum » Mon Sep 22, 2003 1:55 pm

She was on steroids for several weeks and is perfect now! I guess they CAN do wonders! As soon as she gets over this respiratory junk, we'll have another round of bloodwork to be certain that we are out of the woods. If anything looks suspicous, we'll be onto a spinal tap. However, she hasn't complained of a headache in weeks. So, it would appear she is a-ok.
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ADEM

Postby jojoinlondon » Mon Dec 22, 2003 2:04 pm

should your child have a relapse of ADEM two years after the first diagnosis, it is no longer ADEM nor MDEM. There unfortunately is a high probabilty that it is MS but can only be conclusive by an MRI.

My four year old had ADEM a year ago and was in a coma for one month and is now disabled. I have since researched into the difference between ADEM and MS. It is a hard one, but ADEM should be monophasic (occurs once) and certainly has never been called ADEM again after a year. I live in fear and will be getting another MRI when we reach 18 months. Should there be any new lesions or any old ones, then it certainly isn't ADEM.

I hope this has been of some help.
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Postby Guest » Tue Jul 06, 2004 2:41 am

hi, wondering if anyone has had a rashless itch with A.D.E.M. My 3 1/2 year old daughter was diagnosed six weeks ago and made an almost full recovery, however she is now back in hospital due to a relapse. I know itching is associated with M.S. and this concerns me. A response would be greatly apprciated. kelly[/list][/quote]
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Re: ADEM in 4 yr old?

Postby Conor » Tue Nov 25, 2008 4:17 pm

This thread is coming up high on the forum page and I think some of the views are now out of date. It is being suggested that a second attack of almost certainly means you have moved on to MS. While this can be the case, my understanding is that multiplem episodes of ADEM are possible, though still very rare. My son has had 3 episodes and the neuro is sticking with an ADEM dx.
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Re: ADEM

Postby carlzzz » Wed Nov 26, 2008 1:32 pm

jojoinlondon wrote:should your child have a relapse of ADEM two years after the first diagnosis, it is no longer ADEM nor MDEM. There unfortunately is a high probabilty that it is MS but can only be conclusive by an MRI.

My four year old had ADEM a year ago and was in a coma for one month and is now disabled. I have since researched into the difference between ADEM and MS. It is a hard one, but ADEM should be monophasic (occurs once) and certainly has never been called ADEM again after a year. I live in fear and will be getting another MRI when we reach 18 months. Should there be any new lesions or any old ones, then it certainly isn't ADEM.

I hope this has been of some help.


hey hi jojo im from uk too my daughter too had ADEM and has been left with difficulties she was treated in St Georges hospital in London 2 and half years ago i hope you dont mind me messaging you but i would like to hear from you more about your littlens story only seems familiar to my little girl's if you wouldn mind? Im trying to find more people that have experianced ADEM in the Uk thankyou for you time in reading this Carlzzz x
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Re: ADEM in 4 yr old?

Postby SUZIE » Thu Jul 01, 2010 1:25 pm

Hi Carlzzz,
my son was diagnosed when he was 4 (he is now 12). We live in the UK. Would be happy to talk to you. Mostly he has recovered 80%. Still fine and gross motor weakness and learning difficulties, organisational difficulties and behavioural problems which he never had prior to illness.
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Re: ADEM in 4 yr old?

Postby boyzonefan » Thu Jul 08, 2010 8:51 pm

I know of a baby who is 18 months old and presented with mild paralysis down one side of her body. She was diagnosed as having mild ADEM, the symptoms gradually cleared within a few days. My concern is with ADEM's association with MS. Previously the baby had about a 5 week period with very loose stools and mucus coming from her back passage. My understanding is that people with MS can get this type of thing happening to them. Can a baby even get MS, what is the youngest a child could get this condition? If the baby has another episode of ADEM how long would it be between the first episode before MS would be considered. Up until recently myself and others had never even heard of ADEM.
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